The Neurological Patient Experience Survey (England)
PHE ePoster Library. Vibert S. Sep 12, 2019; 274510; 69
Sarah Vibert
Sarah Vibert
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Abstract
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Abstract BackgroundEvidence suggests that people with neurological conditions may have poor experiences of care: the NHS Patient Survey Programme 2017 Adult Inpatient Survey reported that neurological patients reported poorer overall experience of care. A study of the experiences of care of over 10,000 people with neurological conditions is reported here, including health inequalities, experiences of mental health services, employment experiences and outcomes.Method, resultsAn online and in-clinic survey was conducted during the course of 2018-2019. The online survey was promoted by The Neurological Alliance's member organisations (predominantly charities), and via social media. The in-clinic data was collected from patients attending outpatient appointments at 39 clinics across England. The data underwent a rigorous cleaning process, and confidence intervals were calculated on the basis of prevalence data. Key findings include:28% had had emergency admissions in the past 2 years61% haven't been able to continue work as normal since their diagnosis45% had experienced delays in accessing health services to help manage their condition26% disagreed that the health care they had received met their needs31% had not been referred or signposted to support for their mental wellbeing by a health professional, but would have liked thisConclusions The data gathered enhances our understanding of the experiences of people with neurological conditions accessing health services, and provides a baseline for monitoring improvement/future interventions. External funding details The Neurological Alliance is funded by our member organisations and corporate supporters. We did not receive funding specifically for this study.
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