Comparison of cancer prevalence data sources: National Cancer Registry and Primary Care Registers
PHE ePoster Library. Jose S. 09/10/18; 221320; 36
Dr. Sophie Jose
Dr. Sophie Jose
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Abstract Introduction1 in 2 people will get cancer sometime in their lifetime (CRUK). 70% of people affected by cancer have another long term condition (Macmillan), 56% of people survive their cancer longer than 10 years. It is imperative that primary care manage cancer as a long term condition. The Transforming Cancer Services Team for London (TCST) conducted a comparative analysis of the national cancer registration data with the national primary care registers using the NCRAS and Quality Outcomes Framework (QOF) datasets.MethodRecently published cancer prevalence data (NCRAS/TCST/Macmillan) was used to compare national prevalence data with counts recorded through the QOF registers comparing data between 2003-2015.ResultsIn 2015 England, 1,477,142 people were living with and beyond cancer (NCRAS/TCST). GP practice registers record 1,392,577 people (94.3% completeness). QOF data reports 98.6% were added to practice cancer registers since 2003. This data was further segmented for comparison at regional, STP and CCG, which showed substantial variation with some CCGs showing less than 75% completeness.ConclusionThe comparative data shows that primary care practice registers are not fully representative of the prevalent cancer population in comparison to national cancer registration. Without accurate practice cancer registers, primary care will not be able to fairly manage the prevention and long term management of subsequent cancers and/or consequences of treatment of their patients with a history of cancer. The national QOF review and CCG commissioning provide opportunities to increase the accuracy of primary care cancer registers.
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