Patient and Public Involvement at the heart of intervention co-design: exploring community priorities for action to address low birth-weight in Newham
PHE ePoster Library. Rance S. Sep 13, 2016; 138014; 19 Disclosure(s): The Low Birth-Weight in Newham Project is funded by Newham Clinical Commissioning Group/UCLPartners Partnership Programme (The Guttmann Academic Partnership).
Dr. Susanna Rance
Dr. Susanna Rance
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Abstract
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Abstract IntroductionIn 2013, 10.4% of babies in Newham had low birth-weight. This was the highest rate in London and the second highest in England where the national average is 7.4%. Low birth-weight can have life-long health consequences, and prevention of this problem is one of Newham CCG's priorities for action. Following a year's mixed-methods research, the project “Low Birth-Weight in Newham: Definitions, Antecedents and Consequences” is co-designing an intervention to address the issues identified. MethodThe project commenced with a World Café, and recruitment of Patient and Public Involvement (PPI) representatives whose diversity reflects the Newham population. The PPI group, who received voice and advocacy training, provided input to all stages of research: hospital data analysis, community resource mapping, and qualitative interviews with parents and professionals. Broad themes for improvement were drawn from all study components, and put to a multi-stakeholder Action Workshop using a structured Appreciative Inquiry methodology for prioritisation of proposals. ResultsOf actions proposed by participants, those most “voted” were pre-pregnancy health education in schools, support to women's healthy diet and exercise, a support group for parents of low birth-weight babies, breastfeeding drop-in clinics, and awareness-raising combining health advocacy, leaflets in different languages, and use of social media. ConclusionThe project identified a need for positively-focused actions incorporating clear, uniform messages, improvements to service delivery, and links with existing health and wellbeing initiatives. Community engagement will continue throughout co-production of the intervention to be piloted and evaluated this year. External funding details The project's funder is Guttmann Academic Partnership hosted by UCL Partners.
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